According to Lili’s message, the long road to receiving a proper diagnosis contributed to her frustration.
“It wasn’t until I worked with two different pelvic floor therapists that I was even told that the term endometriosis could be the cause of my pain,” she added.
For the actress, asserting herself was the key to getting answers.
“I pushed myself to get an MRI scan and was diagnosed with adenomyosis,” she continued. “From there, I met with an endometriosis specialist and was able to decide that the next step was laparoscopic surgery. At the same time, another gynecologist told me that it was ‘probably not endometriosis’ and that I should go on the pill.”
Drawing from her own difficult experiences, Lili continues to encourage her readers to do what she did and speak up for themselves.
“I’m glad I trusted my body and listened to my intuition, and I’ll continue to encourage others to do the same,” she concluded. “Endometriosis is a highly misunderstood disease, and there is often a gap of 4 to 11 years between the onset of symptoms and the final surgical diagnosis. According to the World Health Organization, it is estimated that one in 10 people with a uterus has endometriosis.”
